Thursday, August 13, 2009

Cynthia Davis: Autism is not a medical problem, let the schools pay for it


Autism is not a medical problem, Rep. Cynthia Davis, R-O"Fallon assures us her latest capital report, suggesting the reason autism legislation failed during the 2009 General Assembly is because it was a "feelgood" bill aimed at penalizing insurance companies by requiring them to cover something that should be handled by the public school system.

Apparently, Mrs. Davis is not only an expect on the subject of hunger and its motivational aspects, but also on autism. She writes, "Those pushing this bill were asking the medical insurance companies also to cover educational problems in a category called Applied Behavioral Analysis (ABA). An educational difficulty is not the same as a medical problem. Autism is more than physical; above all, it is a spectrum of mental-behavioral inclinations that vary in intensity.

"Forcing the medical insurance companies to pay for this treatment would have been precedent setting by requiring them to pay for something non-medical."

Mrs. Davis offers her solution to the problem, which, of course, places the responsibility squarely on public education. Mrs. Davis' report is printed below:


My heartfelt admiration goes out to parents of an autistic child. Welcoming a newborn baby is such a joyous event, so it can be challenging when things don’t go as planned.

One of my favorite books, Parenting Isn’t For Cowards by Dr. James Dobson, explains some of the heroism necessary for effective child rearing. Parenting is riddled with all kinds of jolts that defy our expectations and add to the joys as well as difficulties of raising responsible adults. However when parents discover their child is autistic, they need even more quality affirmation and support from all of us in their lives.

A bill was introduced last session that failed because it:

1.) Would have forced private medical insurance companies to extend additional coverage beyond medical treatments for those diagnosed with this condition.
2.) Would have forced higher insurance premiums to cover these services, some of which more appropriately would be a function of our educational system.
3.) Was structured as an unfunded government mandate -which means it forces someone else to incur the cost associated with delivering a service- but doesn’t provide the resources to pay for it. Unfunded mandates are therefore de facto tax increases.
4.) Was anti-free market. People need to be free to make their own choices of what they want to buy.
5.) Was simply “feel good legislation” which would make the elected officials feel proud of them selves, but give the public the false sense that a problem has been solved. Had it passed, it would have benefited only 22% of those affected.
6.) Would have driven up medical insurance premiums for everyone else, further reducing the numbers of those who can purchase medical insurance.
7.) Would not have required special services for autistic children of persons covered through federally-regulated large employer plans (ERISA). These plans provide health care for approximately 30% of Missourians. All of this adds up to a larger gap between “the haves” and “the have-nots” and accomplishing nothing for those who have no medical insurance.

Most medical insurance companies already cover all the physical dysfunctions related to autism. Those pushing this bill were asking the medical insurance companies also to cover educational problems in a category called Applied Behavioral Analysis (ABA). An educational difficulty is not the same as a medical problem. Autism is more than physical; above all, it is a spectrum of mental-behavioral inclinations that vary in intensity.

Forcing the medical insurance companies to pay for this treatment would have been precedent setting by requiring them to pay for something non-medical.

My solution is different:

Ø I am asking that the Department of Elementary and Secondary Education evaluate whether the ABA could be provided within the context of their educational mission. Under Individuals with Disabilities Education Act (IDEA), each child with autism is served by their local school district. It is the local school district’s responsibility to provide a free, appropriate public education for students with disabilities.
Ø I also am asking for the State of Missouri to develop a training program for parents in ABA. Free classes could be offered on a regional basis and the same course could be placed on a website for a free downloaded. Studies show ABA is most effective when it is done 40 hours a week. Who is with a child more than his or her own family members?
Ø Additionally, I am asking the University system to set up a toll free helpline for parents to call with their questions. There is a substantial lack of information unless you are well connected to those with the answers. Knowledge is power. To empower parents, they need crucial information that benefits their children.

With my proposed plan, parents will be able to help their children with the support of their existing school district, while not raising premiums for others who struggle to afford health insurance. As one who lived without medical insurance for many years, I know how that feels. Most parents want to help their children, but simply do not know how. We can spend our tax dollars more effectively if we empower parents by providing them with the information they need to lovingly help their own children.

I remain optimistic that we can find free market solutions to our problems. Using the iron fist of big government to create additional insurance mandates that hide the true cost and help only a select number of children are unfair to everyone. All Missouri parents who have a child with autism deserve our help.

9 comments:

Anonymous said...

Typical of very conservative, religious-right Republicans, Ms. Davis has NOTHING good to say about public schooling, has no problem supporting vouchers and other methods for moving tax dollars away from public schools; BUT is quick to demand public schools deal with "the problem" kids. Those of Ms. Davis' ilk will do all they can to make sure that only the problem kids are left in public schools!

Anonymous said...

Wow, did you listen at all during any of those legislative committee hearings? Do you even know that ABA therapy is some of the very same therapy that stroke patients receive to help them with processing deficits as a result of their stroke, helping with receptive understanding and speech? Should we rely on the schools to provide therapy to stroke patients as well? By the way, I am lucky. My insurance company will allow some minimal speech and OT therapy (not even nearly enough), but most of the other mothers that I know, their insurance companies do not. Isn't this the physical therapies that are so readily available to children with autism you are referring to in your capital report? Do you really think that the school districts are equipped to handle the intensive therapies that are recommended as vitally necessary by the Amercian Academy of Pediatricas, National Institutute of Mental Health, and Surgeon General? How interesting that you quote Doctor James Dobson. Do you know that his show had an entire broadcast on the importance of early intensive intervention with children with autism and the particular person's story to go with it was the vital success of one child receiving intensive ABA therapy and what difference it made for that child? Do you know how many things have had to be mandated to be covered by insurance? Mammograms, diabetes, etc. Did you look at the facts that were put in front of you that all the other states that have passed this, including one that has no cap on ABA coverage has only increased the insurance premium rates as much as less than 1%? And what are we to do with this pandemic of children that don't get therapy and can't grow up to hold down a job and have to be dependant on the state? Or is that just a "feel good statistic." Have you really opened your eyes and ears to all the information, or just what you wanted to see? Shame on you and all who do not care enough to really help these children. I say shame on you and all of those people, because I am only a mother of a child with autism and an RN that knows what I am talking about. You, as a representative of this state, should be as well versed on this subject if you are going to be as bold to put what you have in your capital report. What you have said is not of fact. The crazy thing is that the correct information is everywhere, but I guess you can't bother to find it. I will make sure that everyone knows your views on this subject. They might want to try and educate you on the simple little facts that they know. There are so many out there. Thanks, Kelli Maxwell

Anonymous said...

Please don't stereotype her with the rest of us right winged religeous Republicans!

Busplunge said...

I will have to invite Cynthia to come down and spend the day with my niece's boy....

Anonymous said...

This woman is insanely ignorant. Does she have any idea ABA is ridiculously expensive, parents HAVE TO be a part of the therapy and there would be very little time left for academics in the school day. Next thing you know she will be channeling Michael Savage and will claim autism is a result of poor parenting.

hulbertmike said...

So if I have heart attack, I go to the doctor, they diagnose me and treat me under my insurance.

If I go to a neurologist and get a diagnoses of autism, I go to school for treatment?

Why is the school solely responsible for a medical diagnosis?

Cynthia, let's get you out and talk to some folks who actually understand this issue please.

Anonymous said...

My local school district doesn't even do ABA therapy. Come to think of it, they didn't even want to evaluate my child, let alone give him the crappy therapy they do provide.

This right-wing and very conservative dad has been working to pay for what therapies we can afford and trying to do ABA at home. Everything I know has come from my wonderful wife...without her I'd be lost and my son wouldn't be making any progress.

I can't even begin to imagine where my son would be had we relied on our local school district...what a freaking joke!!!

Anonymous said...

This women is crazy. It is very obvious that she knows nothing about Autism, ABA, insurance or parenting a special needs child. I think it is quite funny that she suggests parents download an ABA handbook to work with their own children. I think this statement is very insulting to anyone who has studied for years to achieve a BCBA. She knows nothing about how complex Autism and the interventions are. Besides that, parents should get to be the PARENTS. Not the providers. Maybe she should download a handbook the next time one of her children needs a MEDICAL treatment.

Michael E. Robinson, Sr. said...

I'm wondering if this member of the legislature has a Doctorate in Psychology, is a practicing psychiatrist, OR.. does she guess at these conservative save the insurance companies that spent our tax dollars after being bailed out ...agendas? I do believe that she should stick to politics and not make statements that would suggest she actually even has a clue what ABA is or how it's used or even on who and to what extent. If she is indeed impeding the ability for parents to gain funding for ABA and believes in it so much.... then what is she ? One word comes to mind. HYPOCRITE.
One thing I can't stand is a right winged fundamentalist hypocrite.. at least I can sleep at night.. how can someone that delays help to kids that don't have the time for her armchair psychology ? Every day that goes by that there is NO answer as she give NO answer to what she blocked.. instead she justifies it with more garble that won't be heard and certainly will not be passed in this climate. Let the insurance companies pay and let there be peace for kids. ;) Michael